There are a total of 29 condition disorders to be tested on all newborns...California has one additional provision, testing for hearing...BD
WASHINGTON, D.C. –– Congresswoman Lucille Roybal-Allard (D-CA) recently announced the passage of legislation she authored to eliminate preventable newborn deaths and severe disabilities through the increased use of comprehensive and standardized newborn screening tests.
The Newborn Screening Saves Lives Act now heads to the president who is expected to sign the legislation into law.
The Newborn Screening Saves Lives Act (HR 3825) provides federal funding to educate parents and healthcare professionals about the importance of newborn screening, and improves the systems for follow-up care for infants detected with an illness through the newborn screening tests. In addition, the bill requires the Centers for Disease Control and Prevention to ensure the quality of laboratories involved in newborn screening, and establishes a system for collecting and analyzing data that will help researchers develop better detection, prevention and treatment strategies.
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