The registry is using de-identified data to form the registry.  There are other smaller registries but this large data depository will allow for additional research to work on prevention and see results of some clinical trials.

1.1 million patients will be tracked with diabetes in 10 states and will include pharmacy records, inpatient and outpatient records alongimage with standard glucose readings and test results.  It appears to be a pretty good cross section of patients who met the criteria and it is part of a larger data sharing project called the Virtual Data Warehouse.  The HMO  Research Network is a group of 19 healthcare organizations who agree to standardize data sets from EHRs to collaborate and who is behind the Data Warehouse.  BD 

PORTLAND, Ore., June 7, 2012 /PRNewswire via COMTEX/ -- Eleven integrated health systems, with more than 16 million members, have combined de-identified data from their electronic health records to form one of the largest, most comprehensive and most geographically diverse diabetes registries in the nation.

The SUPREME-DM (SUrveillance, PREvention, and ManageEment of Diabetes Mellitus) DataLink includes de-identified health information from nearly 1.1 million people with diabetes in 10 states: California, Colorado, Georgia, Hawaii, Michigan, Minnesota, Oregon, Pennsylvania, Washington and Wisconsin. Participating health plans include six regions of Kaiser Permanente, Geisinger Health System, Group Health Cooperative, Health Partners, Henry Ford Health System and Marshfield Clinic.

The DataLink contains test results, prescription records, hospital and clinic visit information, and vital statistics of more than 1 million people with diabetes. The project also brings together 33 diabetes researchers with diverse backgrounds, expertise and interests.


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