Well it’s time for a rant and discussion on this topic and to try and take a look at the entire scenario. We read every day about “patient engagement” and sure doctors and patients are still engaging with each other but not using the virtual model that our government seems to believe is what we need. As a matter of fact with the current status quo when it comes to much of the personal apps and devices, due to lack of trust, folks are running for the exits. I have to somewhat laugh or look at some of this with disgust when I see how deluged folks have become with “virtual” values that don’t’ exist in the real world. It’s almost comedy in the fact that when you go to the internet every day there’s several articles that “wearables are exploding” and then take a walk out in the real world and I’m hard pressed to see anyone with a “wearable”. I know that’s marketing and it’s gone on for a long time but now it’s so unbelievable with the news, it’s almost a comedy routine as others see the same thing I do.
The Quiet and Unspoken Consumer Movement to Stay Off the Radar - Contrary To All You Read About Sensors, Apps and Wearables, More Folks Are Running for the Exit Doors…
Basically, I almost have to say we are taking care of out health “in spite” of what the government models put out there and that’s a good thing as we are not giving up, but rather just avoiding the broken model of “virtual values” that the government seems to live in today. We’ve already figured out there’s no experts out there as technology changes things on a daily basis almost so when politicians speak anymore, well it’s only good for a couple of hours maybe at best. I think this is further validated too with the large number of people who work in this environment who are leaving as well, when it gets to the point to where all the processes are to build a fix on virtual values, they can’t do it anymore as it doesn’t work.
Healthcare Policy Experts/Politicians - They Really No Longer Exist and Consumers Are Too Busy Being Chased by Algorithms Anymore to Care About You Anyway…
People don’t work like algorithms and yet we have a government that has a big case of being “Algo Duped” every time you turn around as they just live these “virtual values” and scratch their heads and try to work a new and different virtual value to fix the ones that fail and it just builds on itself. It was interesting to watch the big hospital ratings come out, as not the doctors and people that make hospitals work were tweeting and jiving it up all over the web, but rather the CEOs with a steady precession of
800 pound gorillas beating their chests saying on Twitter and in other social network areas “look at how great we are”. We’re not in that time spot anymore as folks are more concerned about “what hospital is going to be available” for us when we need it, so there you go as well with many hospital executives making a million or more that are out of touch as well.
If you want to look at a really broken model, which may have already read, look at the link below. This hospital is totally lost in virtual values with a model that’s not going to work but rather serves to create more money for the data selling business, it is what it is. It was pretty interesting when I found this post being read by the Senate with a few others as well as seeing Acxiom come of hiding and communicate with me on Twitter and I gave honest responses back to them on flawed data and how it hurts consumers while they make money.
Oh Crap, Now Hospitals Are Now Buying Data From Acxiom - Data Selling Epidemic Continues to Evade on Personal Privacy As “Algo Duped-Stat Rat” People Try to Implement Virtual Models That Won’t Work…
Sure as patients and doctors we get excited with new drugs for treatments or cures, but on the other side when we need them, will they be available to us or will we be “scored” to put some of this out of reach…and the world forum on privacy has addressed this very well with their report on the “Scoring of America” that also talks about the obsessive scoring of consumers that denies access and continue to promote “flawed data” at the same time. Doctors and patients are engaging but in ways the virtual government values can’t or won’t choose to understand as we’re still people helping people. When it comes to privacy issues, and I wrote this a while back, even the most electronically connected doctors if they feel there is a need to help and protect their patients, have the little drawer of paper charts.
Digital Doctors” Little Drawer of Paper Charts” Stands to Grow In Size Due to New HIPAA Laws And Insurer Context, Gov Can’t or Won’t Model?
If you read all the studies that come out, the US spends more money and gets worse care and we keep sliding so is it finally time for a wake up call for the government to see they are working a “broken model”? I hope so as if you keep building on the same model it’s only going to keep getting worse. We now have moved from big data to population health and sure there’s some value there with common sense information such as identifying disabled patients as an example and knowing where they live and if they have access to transportation, and sure that’s a good thing. We don’t stop there though after we find that out, we have have to rummage through their MasterCard records and see if they got a new wheel chair last month, or see how many prescriptions were filled to compare this against what the insurance or Medicare claims were submitted. And too, be sure and put the disabled folks on a mailing list to get them to sign up for more credit cards while we are at it and sell their mailing addresses to other marketing firms.
Again, we don’t know when to stop it appears. The latter of what I just mentioned does nothing to promote better care for such a patient. Furthermore is this a patient who will also get hit with the proprietary FICO scoring algorithms too? Let’s get that done too a we have no idea as to what’s in their formula at all, just a bunch of code the proclaims the ability to predict. We are seeing a lot of the predictive models fail today as people take it too far and expect more than what predictive models can actually do. If they were that great, every investor would be rich and there would be no insider trading to worry about.
FICO Medication Adherence Scoring Should Be Banned As It’s Quantitated Justifications for Profit That Hurts US Consumers Using Proprietary Algorithms That Cannot Be Replicated For Accuracy or Audited
I look even at what the White House puts out today with their “email bot” and yes I call it a bot as it’s as impersonal as it can get and uses “junk science” numbers of late and you just look at it and wonder how far “duped in the toilet” are some of
these folks that write to us like we are in 1st or 2nd grade and expect that we just believe this stuff? I don’t know about you but when I see such, again it scares me that we have folks duped at the highest levels of government and we can toss Congress in there as well and their own record of actions substantiates that thought too as again they are stuck in virtual value modes as well.
So again, read all the stuff on the web with “patient engagement” you want and the data methodologies and be assured that patients and doctors are still engaging but we are working with a complex system to where companies that are focused on profits only have created a complex system that nobody likes or can work with and it’s only going to get worse until the model gets fixed and perhaps we get some non Algo Duped leaders in place. The VA as I said is just a screamer with a very sad example of folks stuck in virtual mode as people died. We need balance along the line somewhere folks and the Stat Rat mentality is not the total answer but again the duping process for corporations and banks to make money.
Medicare Penalties for Hospitals To Take Effect Later This Year With Patient Safety - Can We Learn From the VA On Not Being “Stat Rats” And Attain The “Desired Virtual Numbers” In The “Real World”? - Medical Quack
Think of it this way if you would, if patients were excited and wanted to engage, would we need all this propaganda discussing it over and over and over and over? I don’t think so. So again look at the models being pushed upon patients and doctors and go create a “real world” model as that might help and certainly add some virtual values where they help us with decision making but put people first. We are not algorithms and nor are we going to function like them either.
Every week I read about how patients are not educated enough in healthcare and this is partly true but what incentive is there to get educated? We all are coming to conclusion that the web is a dangerous place and you have to keep up your defenses to minimize your data exposure so where’s the incentive? It’s your data they want versus helping with your care anymore that’s taking priority. Again I know the value of data and when it helps with decision making and we need some of it for sure today, but we have no balance with being able to say “I have enough data to make a good decision”…and I think this is the thought process that might be entertained soon I hope.
So again, congratulations HHS, White House, Congress, etc. your virtual world values, which I call “The Grays”, that are just are not working and we would invite you to participate at our levels and experience what’s “really” out there and maybe you could find out “people don’t work that way” and get some balance to your perceptions on how all of this is impacting “the real world”. 
In addition the White House Privacy Report was also a big let down with a lot of bliss and the inability to talk about data selling and privacy together, it’s like they are off in some kind of fantasy world again not to correlate the two, but we do as consumers as we suffer the consequences of all the flawed data.
White House Privacy Report , “Privacy Bill of Rights”Vague & Complex Verbiage, No Mention of Creating An Index to Identify All data sellers Or The Fact That It’s an Epidemic Leading To Privacy Violations & Flawed Data, Hurting Many Consumers As It Actively Contributes to Inequality
If you want I have my little campaign going to at least create a law to license data sellers in the name of transparency here and provide a look up list of what kind of data they sell and to who, so any little bit helps as I have been working on it already for 2-3 years with this concept. It’s not a virtual value, but rather a “real world value” that can help consumers navigate the insanity of the virtual worlds out there on the web. We have no way of tracking virtually anything used to score us and deny care, money, you name it.
People Don’t Work That Way” A World of Broken Software Models That Don’t Align To the Human Side,Too Much Push At Times With Only A Proof of Concept That Fails in the Real World..
As consumers we have been left with something similar to the Bloomberg Big Gulp failed model and I think that project was important as it shows no matter how much money, influence, etc. that you may have, if it’s a broken model it’s still not going to work and look how much time and money it wasted, so you could look at the current healthcare model as just one huge “Big Gulp” failed model if you will.
In the meantime, doctors and patients will keep using “people”methodologies to support each other as the virtual values keep failing as it’s all we have left and it’s really what matters the most and so if we need to head to the exit doors from time to time to do this, so it is as link above states “people don’t work that way”. Even Google is doing a study as they don’t’ understand how people work either. BD
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