One thing that comes to mind after reading this article, does Deven McGraw, quoted below, have a PHR?  This may be a bit of a rant here but after watching the testimonies I was surprised to see most speaking or involved not even aware or having seen a PHR.  This is a consumer product, like a car, for everyone right?  I truly hope that someone involved in all of these meetings has a PHR, or has set up a sample one on the internet so we can all discuss with first hand information. 

Speaking of cars, we have DMVs, where one goes to take a test and learning centers that teach people how to drive, let’s say we do something perhaps similar with PHRs? I have stated this before, we have one big chore ahead in educating the citizens of the US on how to handle and use personal health records, otherwise it’ going nowhere in a hurry. 

I occasionally speak to a senior’s group in Newport, the Computer Friends Group and last time I was there, questions came up about PHRs, as well as some solutions that some seniors already had!  Now is that amazing! Many in the group had taken advantage of the “free” service from the Fire Department to have their medical records on a USB drive they carried with them.  The questions were on how to go to the next level and have them online so they would not need to carry the USB drive.  Hmmmm…think there’s something to be said for this, seniors already carrying around their medical records with them, and this is about 6 months ago.  It says something for perhaps the rest of us to learn from, as this group was not afraid to learn how to handle their health records. 

The EHR situation with doctors and hospitals is needed and the longer we delay, the more errors and less connected we are. People die when information relative to their health and medications is not available, and the funds are needed to create the availability to have credible information available.  Ask any ED doctor if he would like to have some information up front, allergies, meds, etc. before treating a patient. Requiring consent and how to do it is a learning curve we need to address, not ignore.  BD 


Rather than relying on consent to control all uses of health information, the Center for Democracy and Technology said consent should be used in a more focused way. It should be required, for example, for access and disclosure of information in new personal health records being established on the Internet, or for uses and disclosures of information for marketing purposes.

"Requiring consent for all data sharing in healthcare will only overwhelm patients, leading them to give blanket consent and providing very weak protection," said Deven McGraw, the center's health expert who will testify at the Senate Judiciary Committee hearing alongside other consumer advocates, technology and healthcare industry representatives.

The center favors including privacy protections in the economic stimulus plan, House and Senate versions of which contain around $20 billion for a national health IT network.

Nextgov - Think tank details its ideas for use of health IT records

Related Reading:

Medicare Pilot Personal Health Care Pilot Program – Education and Awareness Needed


  1. My name is Kevin Hauser and I am the Director of New Business Development for MedeFile International. I had come across your blog in doing some research. I believe MedeFile can help many individuals, especially the seniors you write of that are facing the issue of obtaining, and maintaining their own PHR.

    In brief, MedeFile is an electronic medical records management service that collects, digitizes, stores, and organizes all of our member's ACTUAL medical records. MedeFile gives you the member, the ability to access your complete medical history 24 hours a day, 7 days a week, from virtually anywhere in the world. In addition, we provide each BASIC and Premium MedeFile member with a MedeDrive. The MedeDrive is a portable USB device that works with any Windows based PC. This device simply plugs in to a USB port and instantly auto loads that member's vital emergency information (Allergies, Medications, Medical Alerts, Emergency Contacts, etc). The MedeDrive also has a password protected area that contains all of that member's ACTUAL medical records as well. The MedeDrive does NOT require any internet connection in order to view its contents and can be updated anytime with no additional charges.

    MedeFile also offers our members an area designed to help members track and monitor healthcare measurements such as blood pressure, cholesterol count, BMI,. etc. Moreover, we also allow members to utilize our 24 hour a day reminder service for doctor's appointment s and medication reminders.

    Our system also provides for the storage of Vital Documents. These may include your Advanced Directives (Living Wills, DNR's, Health Care Proxies), as well as other important documents. MedeFile has been featured on various news segments with regard to the devastating Hurricanes we have seen in the recent years. MedeFile may also qualify as a medical expense under a Medical Information Plan in IRS Publication 502.

    It is important to note that MedeFile does the work for its members. We contact the providers and collect the records on their behalf. I urge you to visit our website at for more information. Please feel free to contact me with any questions that you may have. Thank you in advance.

  2. Much of the discussion about EMR has been way too focused on just physicians and hospitals -- need to keep bringing in patients. Thanks for the post -- keep it up.

    Had to use anonymous, Wordpress doesn't seem to work. @hal9007/


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