I have said this a few times but where in the world are these experts with using a PHR?  Does anyone at the NIH even use one themselves?  Does anyone at imageHHS use a PHR, silence is deafening and we never hear about it.  How about the experts at the ONC, what value do they see in a PHR as they work with and communicate with medical record systems"? 

Where are these folks in reference to being any type of a role model?  Is this more of the experts telling us that their efforts are “for those guys over there” again.  How come nobody talks about the Surgeon General’s personal health record, do government employees use it, and come to think of it, does the Surgeon General use it? 

We have a lot of that out there today with those who promote and tell everyone else what they should be doing, don’t participate themselves and thus we have the emergence of additional assays of “Magpie Healthcare”.  If you promote consumer products are an an expert, it’s a good idea to use the technology yourself, you think?  It builds credibility in what you write as an expert.  Microsoft HealthVault already has their imaging sharing set and ready to go so perhaps a model here to view as well, it’s all free. 

HealthVault Begins Storing Medical Images (Dicom) Using Windows Azure Cloud Services With Full Encryption

Thank goodness we have a few out there who do use the technology and take time to explain to the rest of us, Dr. John Halamka at Harvard is by far the best and most knowledgeable expert here.  When you look at his blog when he talks about technologies, consumer programs too, you see screenshot examples of his PHR, so he explores it and thus so his opinions, instructions and so forth contain real credibility unlike the Magpies that lurk all over the web. 

I use HealthVault as a PHR for both myself and my 86 year old mother and truthfully her records are more in quantity than mine and simple age factors dictate that principle.  Do we have 100% of everything available stored, no.  Do we have the basics that we feel are important to share like allergies, medications, and and advanced directive in there, yes.

In short what I am saying here is that some important information stored here is a lot better than none.  We will be adding images shortly here too as we have recently been right in there with the image chasing game and have run images and had friends even help out taking them from one doctor to another.  We don’t live in the same state and are miles apart so we do what we have to do here so she gets the best care and everyone can have access.  Shoot even if you do not have anything else in there but images it’s a big step ahead with convenience for one and again not duplicating tests.  Think of it this way, as saving money and your time, see any value there?  You should. 

Yes we have all these ideas from HHS that we hear about with new programs and laws, but never a word on any value from those within who create all of this.  I can’t even find so much as an image on the web with HHS director Sebelius with so much as a cell phone in hand, so how visible is that with participation and showing an interest in Health IT…hint…hint..<grin>. I did pick on Joe Biden a while back but he now uses an Ipad himself so I can’t pick on him any longer, a good thing!

HHS National Plan to Improve Health Literacy – Not Going To Happen Until We Focus on Using Technology (The Tool for Literacy) Which Includes Role Models at HHS And Other Places in Government

Anyway coming back around we have the wonderful studies and news that tell us how consumer literacy is pretty much non participatory in Health IT, well look what we have for role models and that will give you one big clue. 

So will Francis. Collins from the NIH be sharing his images or has he looked at HealthVault to get an idea how this might word or will we hear from any other executives there?  Is there anybody at these round table meetings using a PHR, I’m curious we never hear about it and again there’s nothing like hands on experience to give intellectual contributions. 

Personal Health Records – PHR Roundtable At the ONC-Hope All Experts and Attendees Actually Use a PHR-Hands On Experience Coupled with Other Knowledge Is The Best

The doctors fair better with medical record support but they have magpies out there lurking too with experts without any hands on experience telling them too what is good for them. 

Doctors Have Become One of the Largest Software Beta Testing Groups–”Magpie Healthcare” Unfortunately Still Thrives

Sometimes too we have this paradigm of relying on “experts that really don’t exist” but it’s been a way of life for many years and old habits are hard to break.  The TED video below makes some very good points about experts and what we perceive as an expert may really not be the full picture.  What is this addiction we have for experts and are they really in fact what we are visualizing.  When I don’t see any first hand experience discussed, anymore that’s the first thing that pops into my head.  When I read all these expert opinions on PHRs, well you get the picture there.  I have even gone the limit on a few occasions commending the authors on their great write up and then just out of curiosity ask which is their PHR of choice they are using. 

Disappointing to my ears, most are not using a PHR, so how in the world does one become an expert with a consumer product like a PHR if you have never tried one out or at least played with the software…here come the Magpies in force telling you what is good for you, kind of hypocritical you think?  Sad but that’s about mostly what we have out there.  

Relying on Experts When They May Not Exist–Many Intelligent and Smart People But Do We Have Misconceived Paradigms-TED

Well it will be interesting to see what the NIH comes up with by all means and hopefully they will have some internal consumer type of participation so we can look forward to hearing how it creates value…this is a lead hint if you didn’t catch this <grin>.  BD 

The National Institutes of Health plans to develop a medical image sharing system which patients can also access through their personal health records to see and control the exchange of their images with radiologists and other clinicians.

Healthcare providers widely use radiologic and other images for treatment and diagnosis, and a patient may have multiple images for the same problem across care settings, increasing cost and potential health risk to the patient.

NIH plans medical image sharing system | Government Health IT


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